Coordination Team

Centralised at Alzheimer’s Research UK, the Coordination Team plans, coordinates, project-manages and supports the activities of the project. The team works with the Steering Committee and with the Hubs. The application process for collaborative calls will also be coordinated by Alzheimer's Research UK in consultation with the Hub representatives.

Chair

Rafael Jimenez

Rafael Jimenez

Head of Research Informatics
Alzheimer's Research UK

Project management

The Project Management group plans, coordinates, project-manages and supports the activities of the project. It is responsible for facilitating project-internal communication and for ensuring that the EDoN project is delivered on time, within scope and budget.

Lead

Dr Anna Frey

Dr Anna Frey

Research Informatics Programme Manager
Alzheimer's Research UK

Member

CM

Dr Claire Morvan

Research Informatics Project Coordinator
Alzheimer's Research UK

Policy & Ethics

The role of the Policy and Ethics group is to ensure that the public perception and any potential ethical concerns surrounding EDoN are taken into account throughout the project. Additionally, the group will support the regulatory approval process and the integration of the EDoN digital toolkit into the healthcare system.

Lead

Michael Karren

Michael Karran

Policy Advisor
Alzheimer's Research UK

Member

Dr Richard Milne

Dr Richard Milne

Senior Social Scientist
Wellcome Genome Campus

Communications

The Communications group manages the messaging around EDoN with the aim of effectively promoting the project to both researchers and the public.

Lead

Robin Brisbourne

Robin Brisbourne

Science Communications Manager
Alzheimer's Research UK

Member

Honor Pollard

Honor Pollard

Science Communications Officer
Alzheimer's Research UK

Capacity Building

The Capacity Building group engages with external stakeholders that may be able to contribute to or benefit from the EDoN project. In addition, the subgroup ensures that the training needs of all project partners are met.

Lead

Dr David Llewellyn

Prof David Llewellyn

Professor of Neuroepidemiology and Digital Health
University of Exeter & The Alan Turing Institute

Member

Dr Janice Ranson

Dr Janice Ranson

Postdoctoral Research Associate
University of Exeter

Member

federica

Dr Federica Marinaro

Research Informatics Engagement Manager
Alzheimer's Research UK

Member

eiriol

Eiriol Wyn-Beer

Research Informatics Project Coordinator
Alzheimer's Research UK

Fundraising

The Fundraising group engages with major giving donors and corporations.

Lead

Peter

Peter Halewood

Head of Philanthropy
Alzheimer's Research UK

Legislation

The Legislation group provides legal advice relating to the project as required.

Hannah Curtis

Hannah Curtis

Legal partner in the Technology & Media Team
CMS

Governance

The Governance group engage with the EDoN board and oversees governance organisation.

Lead

Nina

Nina Ziaullah

Head of Strategic Programmes
Alzheimer's Research UK

Member

Lizzie

Lizzie Ashley-Webb

Senior Governance Manager
Alzheimer's Research UK