Flow chart- governance structure update

The organisational structure of the EDoN initiative is composed of Operational Groups, a Board, and an International and Independent External Advisory board. The Operational Groups include six Working Groups and the Coordination team.

These groups work closely together to ensure that the project is implemented in an organised, well thought-out manner and produces outputs of the highest quality.

EDoN board

The EDoN board oversees the project and ensures that the provided funding is spent wisely. It consists of representatives of organisations that have made a substantial financial contribution to the project.

DavidCameron

Rt Hon David Cameron

President of Alzheimer's Research UK
Chair of the EDoN board

Operational Groups

Operational Groups

Working Groups

Cohorts & Biomarkers

The Cohorts and Biomarkers Working Group consists of individuals with expertise in clinical research and plays a key role in identifying the cohorts and digital biomarkers relevant to the project. Additionally, this group is responsible for engaging with existing research cohorts to drive the application and validation of the EDoN digital toolkit through prospective data collection.

Dr Catherine Mummery

Dr Cath Mummery

Consultant Neurologist
National Hospital for Neurology & Neurosurgery, University College London

Dr Zoe Kourtzi

Dr Zoe Kourtzi

Professor of Experimental Psychology & Deputy Head of Research
University of Cambridge & The Alan Turing Institute

Digital Tools

The Digital Tools Working Group comprises a group of technology providers and is responsible for developing a collection of low-cost wearable devices and applications that will generate the prospective project data.

Dr Paul Dagum

Dr Paul Dagum

Chief Scientific Officer
Mindstrong Health

Dr Dennis Chan

Dr Dennis Chan

Principal Clinical Research Fellow and Consultant Neurologist
University College London

Fingerprint Analytics

The Fingerprint Analytics Working Group is composed of data scientists and is responsible for developing, validating and refining machine learning ‘fingerprint’ models that can identify prospective data patterns which are predictive of specific dementia-causing diseases.

Dr Richard Everson

Dr Richard Everson

Professor of Machine Learning
University of Exeter

Dr Chris Holmes

Dr Chris Holmes

Programme Director for Health and Medical Sciences & Turing Fellow
The Alan Turing Institute

Dr Ann-Marie Mallon

Dr Ann-Marie Mallon

Head of Informatics
MRC Harwell Institute

Dr Kirstie Whitaker

Dr Kirstie Whitaker

Research Associate
University of Cambridge & The Alan Turing Institute

Digital Platform

The Digital Platform Working Group consists of experts in the provision of data services. This group is responsible for building the data infrastructure that supports the machine learning analysis, as well as the storage and visualisation of the data generated by the project.

Dr Chris Hinds

Dr Chris Hinds

Robertson Foundation Fellow in Digital Phenotyping
University of Oxford Big Data Institute

Dr Mike Oldham

Mike Oldham

Head of Business Operations & Strategy
Vaccines Manufacturing & Innovation Centre

Dr Michael Adeogun

Dr Michael Adeogun

Head of Life Sciences & Health
National Physical Laboratory

Digital Support

The Digital Support Group is composed of experts in digital technologies. The role of this group is to support the implementation Working Groups by providing guidance on best practices in health informatics, as well as by giving advice on choosing the most appropriate technologies for capturing, linking and aggregating data, and developing robust, safe, accurate and intuitive digital tools.

Dr John Crawford

John Crawford

Managing Director
CrawfordWorks

SarahS

Dr Sarah Slight

Reader in Pharmacy Practice
Newcastle University

CT

Dr Clare Tolley

Research Fellow
Newcastle University

Clinical support

The Clinical Support Group consists of experts in clinical research. The role of this group is to support the implementation Working Groups by providing advice on areas such as cognition, neuroimaging, fluid-based biomarkers and health records.

Dr Zuzana Walker

Dr Zuzana Walker

Professor of Psychiatry of the Elderly
University College London

Dr David Llewellyn

Dr David Llewellyn

Associate Professor of Neuroepidemiology and Digital Health
University of Exeter & The Alan Turing Institute

Coordination Group

Project Management

Centralised at Alzheimer’s Research UK, the Project Management group plans, coordinates, project-manages and supports the activities of the project. It is responsible for facilitating project-internal communication and for ensuring that the EDoN project is delivered on time, within scope and budget.

Carol - use

Dr Carol Routledge

Director of Research
Alzheimer's Research UK

Rafael Jimenez

Rafael Jimenez

Head of Research Informatics
Alzheimer's Research UK

Dr Anna Frey

Dr Anna Frey

Research Informatics Programme Manager
Alzheimer's Research UK

CM

Dr Claire Morvan

Research Informatics Project Coordinator
Alzheimer's Research UK

Policy & Ethics

The role of the Policy and Ethics group is to ensure that the public perception and any potential ethical concerns surrounding EDoN are taken into account throughout the project. Additionally, the subgroup will support the regulatory approval process and the integration of the EDoN digital toolkit into the healthcare system.

Michael Karren

Michael Karren

Policy Advisor
Alzheimer's Research UK

Dr Richard Milne

Dr Richard Milne

Senior Social Scientist
Wellcome Genome Campus

Communications

The Communications group manages the messaging around EDoN with the aim of effectively promoting the project to both researchers and the public.

Robin Brisbourne

Robin Brisbourne

Science Communications Manager
Alzheimer's Research UK

Honor Pollard

Honor Pollard

Science Communications Officer
Alzheimer's Research UK

Capacity Building 

The Capacity Building group engages with external stakeholders that may be able to contribute to or benefit from the EDoN project. In addition, the subgroup ensures that the training needs of all project partners are met.

Dr David Llewellyn

Dr David Llewellyn

Associate Professor of Neuroepidemiology & Digital Health
University of Exeter & The Alan Turing Institute

Dr Janice Ranson

Dr Janice Ransom

Postdoctoral Research Associate
University of Exeter

Governance & Legislation

The Governance and Legislation group provides legal advice relating to the project as required.

Hannah Curtis

Hannah Curtis

Legal partner in the Technology & Media Team
CMS

IEEA

International and Independent External Advisory Board

The IIEA board provides technical and scientific advice on the strategy and implementation plans of the project. It consists of experts in the areas of clinical research, digital technologies, data analysis and data services, as well as representatives of key organisations relevant to the project.

Dr-Philip-Scheltens

Dr Philip Scheltens

Professor of Neurology & Director of the Alzheimer Centre
VU University Medical Center Amsterdam

Dr Kenneth Langa

Dr Kenneth Langa

Professor at the Department of Internal Medicine
University of Michigan

Dr David Madigan

Dr David Madigan

Professor of Statistics
Columbia University

Dr William Jagust

Dr William Jagust

Professor of Public Health and Neuroscience
UC Berkeley

GerryReilly

Gerry Reilly

Chief Technology Officer
Health Data Research UK

deborah

Dr Deborah Estrin

Professor of Computer Science
Cornell Tech

emrah

Dr Emrah Düzel

Head of Clinical Research
German Center for Neurodegenerative Diseases, Magdeburg

Additional IIEA Board members will be added in the early phases of the project.